Friday, September 25, 2015

Straight up!

I'm experiencing a miracle!

I saw a post from a friend about an energy/weight loss/vitamin supplement called "Thrive". She was offering free samples. I've been trying it for a week and for the first time in almost three years, I have been able to do a load of laundry each day, drive my kids to school, run errands and FUNCTION; if not on a "normal" level; a whole lot better than I have in YEARS!!! I haven't slept through the morning since I started taking it. I'm up in time to take over from my husband before he goes to work and even on my bad days, I'm quietly puttering or getting things done. Instead of being up for two to three hours (where "up" means sitting on the couch, listlessly watching cartoons with my kids) and then having to lie down for a few hours, before doing the same thing again, I'm a PERSON AGAIN! My kids have, for the FIRST TIME IN THEIR LIVES, watched less than two or three carton episodes each day!!!

Just now, between paragraphs, I went up the stairs at a "brisk" pace and only realized on my way back down that I wasn't out of breath or light headed! I even ate my breakfast yesterday, STANDING UP, and only realized I felt fine when someone in the house asked if I was OK standing so long. I blinked at them for a moment, as I thought about how long I'd been standing there, before glancing at my feet (which were turning slightly purple) and and realizing that I felt fine, despite the blatant discoloration in my feet!! I just started stupidly for a moment before smiling hugely and beaming at everyone in the room!
The "Thrive" Patch on my ankle
I have no idea if it will last! The Thrive supplement has caffeine in it, which is hit and miss for folks with dysautonomic disorders, and a complete NO-GO for certain types of POTS patients. However, it's an actual method of treatment for hypotension disorders, which is one of the two dysautonomic conditions I have, POTS being the second. I don't know if it will eventually cause more harm than good; I don't know if I'll build up immunity and not be able to function, even with it; I don't know if it will last me my lifetime and be an honest to goodness long term solution; but I'm hoping! For a week, I've felt like I've reclaimed myself! And even if it isn't a long term solution, for this week, it has been SO WORTH IT!!! Guys, if anyone struggles, even a little bit, with feeling like they have the strength to make it through each day; try this!!! http://cjeffs.le-vel.com

Love you all!
See you round the webs!

Crystal

P.S. UNDER NO CONDITION DO I RECOMMEND TRYING THRIVE IF YOU HAVE DYSAUTONOMY WITHOUT CONSULTING A DR FIRST! I kind of did, but only because my doctor and I have been working together for so long, and had so little success, and he's all for trying new things as long as we introduce them gradually and I use my heart and blood pressure monitors regularly to be sure I'm safe. AND I check in with him every few months to update him on what I'm trying and what my results are. So really, I consulted with him for years, and knew that he'd tell me to try it, since we haven't tried anything new in several months, and since nothing else is working, but to take it slow and to stop if I had ANY problems, and then to follow up with him. Which is exactly what I'm doing and it's fabulous! However, there ARE subtypes of POTS and DYSAUTONOMY which CAN NOT have caffeine, so be sure that isn't you before trying it!

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