Friday, October 30, 2015

Ups and downs and level!

The last few weeks have been.....interesting, to say the least! *grin*

The first week that I was taking Thrive, I felt so good that I forgot to take my regular medications. I have an anti-depressant and an iron supplement I take regularly. My anti-depressant has a really long half life, so if I miss a dose, I don't feel it right away....for almost a week, actually.

Well, week two went well, but week three on the Thrive, I really was worried that it has run its course, and wouldn't be useful, anymore. I cried a lot! I slept almost the whole week! I was just about ready to give up, when I remembered that I'd missed almost a weeks worth of my medication right at the beginning, and that I should just wait it out, and see what happens once I level out again.

Big! Hint! To! Self!

REMEMBER TO TAKE YOUR REGULAR MEDS, CRYSTAL!!!

.....*thinks about it*.... I'll be right back ....*takes today's meds about five hours late, but at least takes them*

See?? It's hard for me to remember to take my regular meds because the Thrive helps SO much! And today is NOT my best day on the Thrive, either! Today is a "bad" Thrive day, which means it's just a little better than what used to be my "very good" rare days, before Thrive.

I still can't stand in the kitchen and wash a whole sink full of dishes. I still have trouble with the stairs in our split level. I still take naps a few times a week. I still struggle with the "up-down-up-down-up" orthostatic changes that happen when I'm tidying up a room (so I rarely do it.)

But there's so many things that I couldn't do before that I can, now!

I'm able to putter about the kitchen and make very simple meals for my kids and myself during the day.

I'm able to do three or four individual dishes at a time.

I'm able to sit on the edge of the bath tub and help wash my kids or help them potty train.

I'm able to sit on the floor, surrounded by laundry baskets, and slowly work my way through them. (I leave hauling the baskets around the house to put things away to someone else.)

I'm able to stand long enough to brush my teeth EVERY day, instead of only a on the few good days I'd have each week.

And all of this on what feels like a "Bad Day" compared to the better days I've had this month.

I've been well enough to attend a full two out of three hours of church service, two of the last four weeks; when I've only attended 40-50 minutes every third or fourth month for the last three years!!!

Instead of napping at least once or twice a day, I'm only napping two or three times A WEEK! Which is huge!! (I'm not counting last week's sleep fest! I was having drug withdrawals! Lol)

This week, I'm not back to the awesome that was my first week, but I don't care! These last few days have still been better than the best days of the last few years!

And my latest joyful discovery? I've started playing the piano, again. I haven't been able to sit at the piano for more than two to three minutes, every few months, for more than four years. And I've not only spent 10-15 minutes each day this week playing, myself; I've spent 10 minutes each day teaching my daughter.

There's music in my house, again. And on a "bad day!" I'm so happy!

Crystal

P.S. UNDER NO CONDITION DO I RECOMMEND TRYING THRIVE IF YOU HAVE DYSAUTONOMY WITHOUT CONSULTING A DR FIRST!  There ARE subtypes of POTS and DYSAUTONOMY which CAN NOT have caffeine, so be sure that isn't you before trying it!